I have had a quiet few days as every now and again I feel the need to just shut down and be quiet, sometimes when I think about what we have been through in the last 7 years I feel an overwhelming sense of panic take over. We have come so far and I don't have the words to express just how painful and difficult things have been at times. Only a parent will understand the nights that you just cant sleep because you are so scared about what the next day will bring. All I can say is that there are good days and bad ones, I try to enjoy the good and simply survive the bad. There is nothing worse in the world as a parent as not being able to make things right for your child.
Tyler had another go in the electric wheelchair that he needs last Thursday and he was a real whizz in it, he went to Costa and bought himself a drink. This may not sound like much but to us it is absolutely amazing , it showed just how much independence he will get with this chair. The downside is the £5000 price tag, which is why we are now fundraising. He looked so happy and confident in the chair it broke my heart a little not being able to simply say ok lets get it then .The chair takes 13 weeks to build, they will start building when we have about 2/3 's of the money but obviously wont deliver it until it is all paid. That is why we are saying to family and friends please could you make a small donation even if its a £1, together it will all add up. It will also help if you could please share the story. If you work for a firm who might be able to help or have any fundraising ideas please do get in touch Janice.ellis2@btinternet.com, the fundraising page is http://www.crowdfunder.co.uk/tylers-new-living-accommodation?.
We have had some lovely donations already , a huge thank you to everyone who has donated including my friend Lisa's mum and Sis who donated a whopping £250. But please don't think that we don't appreciate each and every bit of support and if everyone who knows Tyler donated a £1 we could book the chair tomorrow.
We had a lovely BBQ yesterday for the boys birthday and the shone actually shone, for those of you who have experienced some of the weather of previous BBQ's you will know what a relief that was. So thank you to(amongst others) Michelle/Duncan/Sophie/Lee/David and Sue for a lovely evening
It was great to catch up with friends and just relax. It actually felt like even just for a short while like things were normal! I also spent some time with my friend Christine over the weekend and again it was just like being a regular person
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