Tyler recovering well and the red tape hasnt moved on !

I thought that I would start this post with a few of my favourite pictures of Tyler with some of the children that he has helped. I must add that Tyler is Peppa Pig we didn't have a female volunteer so he as ever stepped into the breach, I dont know many teens that would do that .

Tyler is slowly getting back to himself he has some pain as to be expected, the metal clips come out tomorrow and from that he can start back at physio etc. I had hoped that we would be able to get him up to the children's hospice to use the pool to help with his rehab, unfortunately that sago is ongoing. We visited over a month ago to try and resolve this, unfortunately due to emails they never received and other issues it only went to panel yesterday. Our lovely GP came out to visit Tyler and she said that she had spent her Sunday writing up a report to support Tyler. The hospice had only written to her last Friday, and as she knew the panel was coming up she gave up her valuable free time. As it is we are not sure if they will have received it in time. Its so frustrating that just as Tyler really could do with the help red tape is holding everything up. I just hope against hope that I don't get a letter on a Saturday to say that he hasn't been accepted. It is a common thing to get bad news by post on Saturday when there is no one around to talk to about it.

As I have slowly cleared my emails I have also realised that there has been no progress on either the electric wheelchair or the chair to get the bed out of the lounge . I really wonder how we are meant to make people listen and get Tyler the basics that he needs to live a normalish life.

A lovely lady from clic sargent is liaising with the college to see if its possible for someone to come out for an hour a week to ease Tyler back into his course. It may be scans permitting and red tape sorted that he can enjoy a return to college in Sept . In the meantime we are just trying to look at some sort of holiday for him. The sad fact though for us and for other families in our position is that nearly always one parent has given up work , making finances tight.

As a side issue but something that could have hurt Tyler quite badly(he is numb on the left), I bought him some sweets and he suddenly shouted   and he had found what looked like a piece of glass in his sweets. Environmental health and the foods standards agency became involved and it was indeed glass, it came to light that the sweets were actually manufactured in Turkey . As they have had no other complaints they have decided not to take any further action, this could have shredded Tyler's mouth and the thought of a young child popping it into their mouth is horrible. I was advised to liaise with the firm as to what happens next, surprisingly they are not replying to any emails!! I have hunted on line and their information despite being a well known brand is really hard to find . I think that it is very scary that you could be buying sweets for your kids thinking that they were made here and infact they come from Turkey. To then find you have no redress when the sweets contain glass is beyond belief. 

Lets see if tomorrow brings any positive news!